Showing posts with label Alzheimer'sResearch. Show all posts
Showing posts with label Alzheimer'sResearch. Show all posts

Thursday, July 6, 2017

Insights into the Netherlands

July 6, 2017 - Weesp, Netherlands - Dodging the rain tonight as I camp just outside Amsterdam. 

A couple from Scotland are my neighbors. They're touring the Netherlands on bike along with their 13-year-old son Finn. 

The weather caught us all by surprise this evening. We all thought the rumbles of thunder were planes taking off from Amsterdam. 

This is Finn's first tour. He's been sunburned. A fair skinned ginger, Finn is a tough kid that enjoys the biking, seeing the sights ... and the food. 

I made it out of Breukelen this morning and chased these women off the road. One yelled and I could tell they were from the states; three sisters on vacation with their families in the Netherlands. 

Moving from south of Amsterdam to northeast and a more cultural experience, from what I'm told.... i.e. wooden shoes and authentic dress.

Not sure if this is a Dutch treat like the heavy cream Gelato in Italy but the line was out the door so it had to be good. 

Coffee ice cream with Oreo cookie as a chaser. 

Another true cultural treat is the stroopwafel which is made from two thin layers of baked dough with a caramel-like syrup filling in the middle. 

No way was there any thought given to eat a whole one. They were the size of a healthy pancake the likes of Breakfast on the Farm.

Biking into a new city and someone yells, "Judy."  

It is oddly someone I know. 
Jan and Ria Noordmans from the last campsite. I joined them for coffee. Ria is a nurse who works with people who have had stokes and Jan is a former insurance agent with a volunteer spirit. 

One of many tree-lined bike paths in the Netherlands.


Tuesday, June 27, 2017

Off to work today in Holland

June 27, 2017 - Netherlands - Off to work today in Holland. 

Leaving Lisse after 22 miles out of Amsterdam on Monday and a wonderful stay with Eduard and Marthy at Bed & Rest - De Dahlia. A beautiful house with energetic neighbor boys, Sam and Simon. 





Monday, June 26, 2017

Launching The Amazing Ride in Tribute to My Dad Today

June 26, 2017 - Washington County - Today, the first day of The Amazing Ride For Alzheimer's, I'll be traveling in the Netherlands to kick off the bicycling fundraiser in tribute to my dad, Al Steffes (photo below), who has Alzheimer's disease.

As in the past, I'll ride in tribute each day over the next three weeks to someone affected by Alzheimer's.

If you would like me to ride in the name of someone you know, send their name, a jpeg photo, a brief note if you like, and your contribution of $100. The entire $100 donation will go toward Alzheimer's programs at Cedar Community.

Checks should be made made payable to "Cedar Community Foundation" 113 Cedar Ridge Dr., West Bend, WI 53095


Cedar Community is a 501(c)3 not-for-profit organization and donations are tax-deductible.

Sunday, June 25, 2017

Bike is cumbersome, but connects conversation



June 25, 2017 - West Bend, WI - Just sharing some of what it's like traveling with a bike in a box. 

Cumbersome is one word that nails it. 

My bike flies with me on these tours. I take off the front wheel, handlebars and pedals, pack it up and heft it through the airport ... along with my luggage. 

From what I've witnessed it's easier than a kid in a stroller. Few people offer to help which means I must look capable; "sturdy" is how one gentleman described my appearance. According to the Urban Dictionary a sturdy girl is "equally capable of climbing rocks."

I've got my system down to a science. 

The other thing that happens behind the scenes is the bike is a conversation starter. 

So far the three people I've met in line have all had a family member who has had Alzheimer's. "My friend nursed his wife until her death," said Bill. "Now he's 90 years old and taking care of his son who has Alzheimer's." 

Bill wished me luck on tour and so did the woman at the ticket desk at Delta. She even waived the fee to fly my bike. "My grandma has Alzheimer's. I really appreciate what you're doing," she said. 

On a side note: This year the bike and contents tipped the scale at 52 pounds. My luggage for three weeks weighed in at 15 pounds. 


Tuesday, June 21, 2016

Birthday Tribute to My Dad

My dad turns 92 years old today. Who can even imagine living that long. 

He's packed a lot into those years. He's a veteran, a graduate of Marquette University, a father of seven and grandfather of 13. He is a man of great faith.

When we were growing up he made sure we all had bikes. Most weren't the newest, but they all worked. 

We were the Wallendas of Whitefish Bay when he attached three tandems together. It didn't work like we thought it would but it was fun to try. 

Old school German ingenuity.

My dad is in pretty good shape for 92. He walks about a half mile three times a day and he can play a mean game of Solitaire on the computer. 

He's a 'happy' Alzheimer's and I ride my annual bike tour as a tribute to my dad. 

I'm also riding the same bike I had when I graduated high school in 1982 because of my dad. It was that Depression-era mentality. "So if it still works I don't understand why you need a new one." 

Happy birthday to my Dad.

Sunday, May 24, 2015

Music, exercise and rummage therapy are my Rx secrets for Alzheimer's


Took my dad to Kewaskum today for its Village-wide rummage sale. My father is 91 and suffers Alzheimer's. He is mighty fit and farm strong. When he's dressed up (normally for a funeral of someone younger) people say, "Al looks like he's ready to start a corporation."

His appearance is deceiving; my dad is adrift in Alzheimer's in a well-preserved body. His world resets every three seconds. Memory is definitely an issue with repetitive questions, no sense of a current timeline and you can't say, "Do you remember this or that" ... because, no.... he doesn't. 

I found he responds well to music and exercise. Rummage sales are also good therapy. We always used to go to sales together on Saturday morning.

I find it's a good opportunity to drift back into his era - because I know he's never going to be able to step into mine.

At the sales we gravitate to hardware, tools and farm equipment. "What's this," I said holding up a carpentry thingamajig. "That's a planer," he said. My dad was a Mr. Fix It in his prime. "How about that," I said. "It's a horse collar you'd put it over the back of the horses neck......" And there he goes .... it's more words than we've heard in a week.

"Did you have horses when you were growing up," I ask. "Well, yes. Matter of fact I'd have to get up in the morning, milk the cows, load the milk into the wagon and take it to the cheese factory in St. Cloud."

I've heard the stories a million times. But now he's in his element. It's kind of amazing really, because otherwise he says nothing.

A couple of things about the disease - my dad doesn't initiate conversation and when we walk from sale to sale he follows about five paces behind. I'm told that's normal for someone with Alzheimer's.

At each sale I hear the same comment "high prices." It's a hard thing to grasp, this 2015. Maybe my dad is the lucky one - stuck in his era of Happy Days, 15-cent a gallon gas, and when neighbors helped neighbors - because it's what you did.



Today I found a 45 rpm of Elvis with The King on the sleeve. "How much change do you have in your pocket," I asked. My dad pulled out 57 cents and handed it over. It was a good old-fashioned rummage, they took it - happy to make a sale.

We normally don't buy much, but it's quality time and gives my mom some freedom, even if only a couple hours.

After my small purchase, we stopped at a sale by Kewaskum's famed Jules Dreher and then head home.

Getting out of the car my dad turned to me. The look in his eye is very distant. I ask if he was feeling OK and after somewhat of a pause he said, "You owe me 57 cents."

I consider it a miracle. That was more than a half hour ago.... from a guy who can't remember three seconds ago. I laughed. It's a sign - - the rummage therapy works.

I know somebody's in there.... it's up to me to reach him.

I think I'll keep my dad on the hook with that 57 cents... at least for a bit. Selfishly, maybe he'll stay around a little while longer.

Friday, April 24, 2015

Successful 'Read to Your Child Day'

Had a nice opportunity to volunteer at 'Read to Your Child Day.' It was presented by the Family Center of Washington County and by the West Bend Rotary. The kids were really attentive and I managed to hold their attention with Harold and the Purple Crayon by Crockett Johnson.



Tuesday, March 10, 2015

Horicon Bank pledges support

Received some nice support from Horicon Bank which is sponsoring the 2015 tour. There's still room on this year's bicycling jersey for one more primary sponsor. Opportunities listed below. A big thanks to current sponsors USCCA, Salberg Law Firm, Thrivent Financial, and Wiedmeyer Trucking.



Sponsorship Opportunities

$7,500 - $9,999           Wheelie  Lifting the front wheel of the bicycle in the air
Corporate logo on bicycling jersey ŸWeekly personal postcard from the roadŸMotivational speaking engagement at your business and organization before and after the rideŸComplimentary Amazing Ride for Alzheimer’s bicycling jerseyŸRecognition on the “Amazing Ride for Alzheimer’s” blog

$5,000 - $7,499           Cadence  Pace at which you ride – general steadiness
ŸCorporate logo on bicycling jersey ŸWeekly personal postcard from the roadŸMotivational speaking engagement at your business or organization before and after the rideŸRecognition on the “Amazing Ride for Alzheimer’s” blog

 $2,500 - $4,999          Wheel and Sprocket  Primary gears and parts of a bike  
ŸCorporate logo on bicycling jersey ŸWeekly personal postcard from the roadŸRecognition on the “Amazing Ride for Alzheimer’s” blog

 $1,000 - $2,499          Chain Gang   Repair crew
ŸCorporate logo on bicycling jerseyŸPersonal postcard from the roadŸRecognition on the “Amazing Ride for Alzheimer’s” blog

$500 - $999                             Pelaton   The large main group in a bicycle road race
ŸPersonal postcard from the roadŸRecognition on the “Amazing Ride for Alzheimer’s” blog

$100 - $499                 Fans 
ŸPersonal thank you letter.

Checks payable to "Cedar Community Foundation"  113 Cedar Ridge Dr., West Bend, WI 53095
Cedar Community is a 501(c)3, donations are tax-deductible and the Federal Tax ID No. :  39-1249432
Judy Steffes   262-334-4526

Tuesday, February 17, 2015

Thanks to West Bend Noon Rotary - guest speaker Monday

Took advantage of a nice opportunity to entertain the West Bend Noon Rotary with my stories from the road. I was able to tell them of my great adventures pedaling 1,031 miles from Nova Scotia to West Bend.

"Then the village clerk rolled out a cot and said, 'it should be pretty comfortable, the fire department is the only one that uses it for CPR training.'" It's no wonder I travel alone.  

I sparked some interest in this year's tour and chased through a stack of sponsorship forms. 

Looking to build on the $82,000 I've raised for Alzheimer's activities and events at Cedar Community.

Joining me at the podium Monday were West Bend High School students Drew Rettler and Lindsey Brugger. Drew is a wrestler and he coordinated the garbage collection during the Rotary's Riverfest. Lindsey carries a 3.95 GPA and is a hostess at Riverside Brewery.

Monday, February 9, 2015

RIDING IN TRIBUTE

During my upcoming Amazing Ride for Alzheimer's tour in Italy I will be riding a day in tribute to Vic and Gen Albiero. Their photo will grace the top of this website for a day and I will detail my days travels in their honor.

On a side note, it was Vic who gave me a $100 donation three years ago for my first ride for Alzheimer's in Alaska. The wheels had started falling off my plans and I went to give Vic his money back and he said, "Just do the best you can."  Sound advice and inspiration enough to continue to move forward.

Three years later the tours have raised over $82,000 for Alzheimer's activities and events at Cedar Community.

If you would like me to ride a day in tribute to someone - all it takes is a simple $100 tax-deductible donation and a jpeg photo set to judyharley@yahoo.com

More details are below. 

Checks payable: "Cedar Community Foundation"113 Cedar Ridge Dr., West Bend, WI 53095Cedar Community is a 501(c)3 not-for-profit.

Include Federal Tax ID No:39-1249432
                             100% of donation goes directly to Alzheimer's programs



Monday, January 26, 2015

Salberg Law sponsors tour


Major thanks to Amy Salberg with Salberg Law Firm for sponsoring this year's Amazing Ride for Alzheimer's. I spoke before TEMPO Washington County; it's an organization made up of 'Women of Influence' in the county who want to connect with like-minded professionals. 

The speaking engagement was at West Bend Mutual's Prairie Center. About 15 women were in attendance and dressed in business attire and I stood up front and told them about my fundraising tours which included things like bicycling in a garbage bag when it's raining and never having a reservation for where I was going to spend the night and raising money for Alzheimer's.

I guess I was riveting and inspiring.... at least that's what they said.  Below is a thank-you note I received from TEMPO's Julie Gabelmann. If anybody else would like to schedule me as a wonderful and entertaining speaker - give me a call at 262-334-4526.

Dear Judy,
 
Thank you once again for the gift of your time yesterday at our TEMPO Washington County luncheon!  You are an extraordinary woman and a gifted speaker who engaged us in the adventure and humanity of your travels.  And if that weren’t enough, your gracious heart and sharing of family connections to Cedar Community and Alzheimer’s touched us all.
 
On behalf of the TEMPO Board members and all of our guests, let me extend our sincere thanks and great appreciation for the gift of YOU yesterday!
 
Always Warm Regards,
 
Julie
 
Julie Gabelmann
Managing Director and
Chief Operating Officer
ASQ
600 N. Plankinton Avenue
Milwaukee, WI  53203



Sunday, December 7, 2014

My goal on the 2015 tour is to make this happen in West Bend

The folks at Cedar Community gave me the privilege of seeing this documentary, Alive Inside, at the Milwaukee Film Festival. It inspired me. My goal in the 2015 Italy tour is to raise enough money to provide iPods and music for folks that suffer Alzheimer's and dementia in West Bend and Washington County.

Sponsorship proposal to be released shortly.

Monday, June 23, 2014

Future bikers at KinderCare in Green Bay, Wis

                                                                                 

GREEN BAY - Before taking off this week I had the opportunity to speak to the class at KinderCare Learning Centers in Green Bay. The group was FANTASTIC! Very bright students that were not shy about asking questions like "how many miles from Nova Scotia to Wisconsin?" and "Did I ever run into any alligators or sharks?"

Every student helped identify some of my gear including a bike lock that looked like a walkie talkie, there was laughter about my half a toothbrush and a lot of ooooohs and ahhhhhs over the mini keyboard with which I write my stories.

There was only one small distraction when a 6-and-a-half year old boy noticed a chipmunk running through our make-shift outdoor classroom .... otherwise we managed to stay on task.

                                                                        
All students were given color photos of some of my animal encounters including a big brown bear from Montana, a baby spider monkey from Minnesota, and an intimidating Tyrannosaurus Rex I saw during a behind-the-scenes tour at the North Dakota Heritage Center in Bismarck, ND.

Since we were focusing on fitness all the KinderCare students, including a tiny 5-and-a-half year old girl, took a shot at dead lifting my steel-frame bike. The little girls was tiny, quiet and did a complete clean-and-jerk dead lift. No sweat. It was very Mighty Mouse. Then a line formed (see photo below).  I had to remind the students I normally rode my bike on tour.... I didn't carry it.... but it was fun nonetheless.

                                                                             
Flight leaves Friday for Nova Scotia.  Signed, Judy Steffes (age 50 and a half).

Tuesday, May 13, 2014

Thanking sponsor Thrivent Financial


 
Thrivent Financial is one of the primary sponsors of the Amazing Ride for Alzheimer's and they will be hosting a Fish Fry Fundraiser on Friday, May 16 at Washington County Fair Park. Money raised will benefit the Volunteer Center’s Youth Volunteer Initiative which kicks off this summer with Camp Superhero. Tickets can be purchased at the Volunteer Center, Washington County Fair Park, Glacier Hills Credit Union, Cedar Community, WBKV-WBMI, WTKM or online at volunteernow.net  

I will be volunteering at the event and have my touring bike on display LOADED with gear. I'll also be available for questions AND hope to unveil this year's tour jersey. See you Friday. The event starts at 4 p.m.

Thursday, May 8, 2014

Lost diary recovered from 2006 tour

                                                                           
I'm often asked if I ever plan to write a book about my travels and adventures. It's always a thought - - but I procrastinate because of time and the fact I lost a portion of my diary when Yahoo changed its website.

Tonight as I was futzing around on the Internet I found it! My entries for my 2006 tour from South Carolina to West Bend.  I'm elated and below is just one of my ridiculous days on the road. ((Looking back on this - - even I THINK IT'S CRAZY!)


SURVIVOR STEFFES - HITCHING A RIDE THROUGH THE HILLS   SEPT 15TH 2006

This has now officially become the bicycling/hitchhiking tour.  It's a clunky way to travel, but somehow I think it'll catch on.  

Unsafe roads and way too many steep hills, along with my ignorance about the area, have prompted the decision to revert to Plan B.

I left Abingdon, VA with every intention of make it across the state line to Kentucky today.  However, during breakfast at the Chicken Little Diner I started listening to the locals talk about ‘bad roads’ and ‘not enough room for you and the trucks.’
                                                                        

In an attempt to add a little levity to the issue I asked one trucker what the CB term was for they bicyclists.  "Vehicles" he said blandly.  "Vehicles?" I repeated.. "NO, VICTIMS," he said enunciating so as to wipe clean his southern accent.  

Not long into the ride on Hwy 19 from Abingdon to Hansonville proved to be what the locals said - - not enough room for me and the semis.  And the semis weren't moving over.

Pausing at a gas station to rest my nerves I met Mike.  A former sheriff's deputy in Wise County; now retired.  "Injured on the job fighting with an 18-year-old drunk," said Mike who had a bald head and the build of a WWF wrestler.  Mike owned a couple acres and a few horses in the mountains.  He took me past our initial destination of Coeburn and dropped me off at the Food City in Wise, VA.  
                                                                         

That's where I met Drew and Peggy.  Drew was in a one piece blue and orange jumpsuit and I asked him for directions.  He told me to 'hole tight, I'll take ya dare.'

We threw my rig in the back of his pickup, nestled it between the gas cans and weed eaters.  "We'll take yuse as far as Pound, then I's got to get back and mow."  

I jumped into the front cab next to Peggy.  She helped Drew with the mowin'.  The two were a younger couple, not married.  If I were to profile Drew, I probably would have been wary of getting in the vehicle alone.  He had tattoos up and down his arm and talked about working in the coal mines.  "Make about $25 to $30 an hour," he said adding “the huge fans worked to keep most of the bad gasses out.”  

We became a very close threesome within the next 10 miles. Mostly because Drew tried driving at the speed of light and every turn had gravity pulling us to one side of the vehicle or the other.  

Drew and Peggy also took me a bit further then Pound.  "We'll gettcha up this last hill and then you'll be able to just drift into Kentucky," said Drew.
                                                                                       

I drifted a bit and then had two more huge hills to climb before resting at a gas station outside Jenkins.  As I was sitting I saw an old lady trying to lift the hood of her vehicle.  She seemed to know what she was doing, but after unlatching the hood she didn't have the strength to push it up.   "What do we have goin on here," I asked raising the hood and clipping the brace in place.  

"That's my mess over there," said the woman pointing to a pool of water by the pump.  "Need some water for my radiator."  Viola was 83 years old.  She had a little egg from breakfast in the corner of her mouth.  She also had a snack packed for later that day, on the front of her shirt.  

"Do you like this area," she asked pleasantly.  "Very hilly," I started to say and Viola cut me off.  "Oh the trees are so pretty and when it snows it's just gorgeous."
                                                                                   

Viola doppled inside to get some water and I went to the house next door to the gas station.  The building had been converted into a radio station and I went to chat about format and news.  After about 10 minutes my break was over and time to get back on the road.

As I was pulling up the driveway onto the highway I ran into Viola, she was walking.  "Hey Viola, where are you going," I asked.  She acted surprised, like this was the first time we met.  "I'm crossing the road to make a phone call," she said.  "Didn't they have a phone back at the gas station?" Viola waved me off like there was a feud between the Hatfield’s and McCoy’s and she wasn't about to use THEIR phone.

"I have a phone you can use," I said.  "YOU have a phone," she said almost laughing and secretly knowing my lifestyle ban on phones and figuring I was only smart enough to turn it on and then we'd both be stuck. 

Viola was giving me a lot of credit, I really haven't even tried turning it on yet.  

"I don't think you should be on this road," I said as a passing semi drowned out my words. Viola didn't react, she just kept on moving.  "I'll walk with you," I said... to Viola's back.

Within the first 10 feet on the highway there was a WIDE LOAD house parked at the side of the road.  The ditch was too deep on one side so Viola continued walking with confidence on the speedy-highway side.  

It felt just like the television show Survivor and our mission was to get the old lady across the highway.   

We were a team, edging alongside the wide load.  Me saddled with my bike and 70 pounds of gear and Viola armed with determination and constant confusion. 

"We'd better hurry," I said keeping an eye over my shoulder for traffic. Viola turned and looked at me, like it was the first time she saw me.  She also felt she was holding up the line so she turned and graciously waved me ahead.

"That's o.k.," I said.  "I'll follow you."  And that's when Viola felt it was time for a hug.  "Oh you're so nice," she said pulling me close and unintentionally sharing her snack.
                                                                                

Pushing forward I suggested we cross to the median.  I tried to rush and Viola kept to her 'I've-got-nothing-on-my schedule' pace.  We reached the median and I suggested Viola take my hand as we cross to the other side.  She looked at me with a hint of stubbornness.  "I can," she began and stuttered as she stumbled off the curb.  "I can do it myself."

Viola was testing my survival skills along with my patience.  

I managed to flag down one of the truckers crossing the Highway returning to his wide load.  "Come help this lady," I said.   He moved one step slower then Viola but finally the two got across the road and I headed for the state line.


2014 TOUR - Amazing Ride for Alzheimer's LEAVES JUNE 27.  Be sure to follow along!